Participant Survey

Question 1. What is your full name? (If you wish your response to remain anonymous, please leave this blank)

Question 2. Tell us about your disability. Remember you can leave any question blank that you don't want to answer.

I have:
Intellectual disability,Autism,Acquired brain injury,Down syndrome,Other

Question 3. Please tell in your own words about your disability and how it impacts your communication.

Question 4. How well do you speak to other people?
I can speak well,I can speak but it's hard sometimes to talk to people,I can't speak at all

Question 5. Please choose all the other ways that you like to communicate with people.
I like to use a communication device or aid,I like to see and point to pictures or photos,I use gestures or signs to show people what I want and need,I like if people can explain by using drawings or pointing to objects,I need people to use easy words,Other

Question 6. Is there anything else you want to add about how you like to communicate?

Question 7. Do you find it hard to talk to people who work at the hospital?
YesSometimesNo (If no, skip to Question 10)

Question 8. Tell us why it was hard for you to talk to people who worked at the hospital. Please choose all the things you agree with.
They could not understand me,They talked to my support person instead of me,They ignored me,They used words that were hard for me to understand,They were too busy to talk or listen to me,They didn’t talk to me about my feelings,They didn't know how to communicate with me or read my communication plan,They didn’t have easy read information, or pictorials, objects, signs, or an interpreter,Other

Question 9. Is there anything else you want to add about why it was hard to talk to people at the hospital?

Question 10. Will any of these things help people working at the hospital to communicate with you better? Please choose all the things you agree with.
Treat me with respect, talk to me first and make sure I have a say in what is happening,Take time to listen to me and let me use my communication aids,Show me photos of what will happen,Use objects to show me what will happen,Use words that are easy to understand,Use easy read information to tell me what I can expect to happen at hospital,Include me in conversations with my support people,Make a plan with hospital staff that includes details on what help I need and how I like to communicate,Offer access to quiet safe spaces when I need it,My disability might not be why I'm at hospital. Do not ignore my symptoms,Understand that I might need medication to help me communicate and make choices,Do not assume that my behaviour is part of my disability. Talk to me about my health and if my behaviour is communicating a need,Other

Question 11. Is there anything else you want to add about what hospital staff can do to communicate with you better?

Question 12. Tell us about things that were good for you when you went to hospital.